CHADD: Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) was founded in 1987 in response to the frustration and sense of isolation experienced by parents and their children with ADHD. Today it is recognized as the leading patient advocacy group for families of ADHD patients, whether they are children or adults. CHADD runs the National Resource Center on ADHD (NRC), established to be the national clearinghouse for the latest evidence-based information on ADHD and primarily funded through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). CHADD also has local chapters throughout the United States.
ADDA: The Attention Deficit Disorder Association (ADDA) is the world’s leading adult ADHD patient advocacy organization. They provide useful resources specifically designed for adults with ADHD.
The American Academy of Child & Adolescent Psychiatry (AACAP) has developed a comprehensive ADHD Resource Center for Parents, Patients and Health Care Providers.
NIH/National Institute of Mental Health has developed a comprehensive description of ADHD including signs and symptoms, risk factors, and treatment options.
Narcolepsy Network is a national patient support organization founded in 1986. Their primary focus is to 1) Educate and inform individuals with narcolepsy about this life-long neurological sleep disorder, available treatments, and symptom management so they may be empowered to achieve the highest quality of life possible; 2) Provide emotional support and resources to patients, family members, and friends; and 3) Serve as a resource center for patients, medical providers, educators, employers, and members of the public.
Wake Up Narcolepsy (WUN) is non-profit organization dedicated to supporting Narcolepsy awareness and research to find a cure. WUN carries out its mission by providing funding to accelerate a cure for Narcolepsy, Increasing awareness of Narcolepsy, Decreasing time-lapse from symptom onset to proper diagnosis, and Providing supportive resources for people with Narcolepsy and their families.
NIH/National Institute of Neurological Disorders and Stroke – Narcolepsy Fact Sheet contains information on what is narcolepsy, who gets it, what are the symptoms, what are the types of narcolepsy, what causes it, and what is the state of the science involving narcolepsy.